Wednesday, May 16, 2012

Being Blind Sucks When Your Kid Has a Rash

Being legally blind and having low-vision there is a lot I can see. I can see color, movement, a fair distance in the right sunlight. But no matter how hard I squint or focus my attention I simply can't respond to the question I am being asked by my favorite nurse at my daughter's pediatrician's office. "What does the rash look like?"
"Um. . . It's red. Reddish, no. . . . Maybe pink?"
"Are they dots, line, or solid patches?"
Silence. (I am beginning to have flashbacks of the ACT's. Maybe if I answer C, I'll have a higher success rate. That is a thing, right?)
"Hmm . . ."
"Is it bumpy to the touch?"
"Not really?"
After about 3 minutes of this my lovely (and tremendously patient) nurse tells me the same advice she told my husband when he called 3 hours ago. "Give it until morning. Treat the fever. It's most likely a virus and it has to run its course."

Ok. Fair enough. But I can't let it go until morning. There is something wrong with my daughter and not only can't I fix, I can't even DESCRIBE it. This is a feeling of helplessness that I don't think I will every adjust to. I understand completely that kids get sick and as a mother (and not a doctor) I am not always going to be able to fix it. That's where I am readily willing to seek out the advice of professionals. However, if you can't see the problem, how can you even begin to seek out assistance?

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